Butterflies for the first day of school!

So tomorrow is my son's first day of first grade! Needless to say there is a to do list a mile long and I have to rely on everyone else to get it done! Oh how I hate that aspect of this disease you have to give up so much. Future plans, hope, control, and your body. It is not cool. Constantly adapting to new symptoms is exhausting. But by far the worst is the fear. Fear of when and how the next big attack will hit, how bad will it be, is it going to be the big one? It is really hard! Hope you all are doing well! Cheryl